3 February 2021

A Life Worth Living (04/2021)

 


Title : A Life Worth Living
Author : Yvonne Foong
Publisher : Yvonne Foong
No. of Pages : 132


REVIEW 04/2021.


This is the sequel to her first book “I’m Not Sick, Just A Bit Unwell.” Although the total page is lesser than the previous, the writing in this book, however, is smaller and the spacing is also very tight. I had to strain my poor eyes to read them. But this sequel contains more information into her ordeal.

Interestingly, the cover of this book featured Yvonne in her ballet dress and smiling childishly. In fact, her chapter titles are illustrated with ballerina figures intricately and uniquely drawn for each chapter. 
 
The first book was written in 2006 and this one was in 2017. In that span of 11 years, Yvonne had undergone over 22 surgeries. I could not imagine how she had managed to endure them, including rehabilitation after the surgeries.
 
This book started with the story of her father, who suffered from a brain haemorrhage since she was 3 years old. His condition made him incapable of taking care of the family. When she wrote about her mother, it was in a less friendly note. Her relationship with her mother was always strained. It was “tough love” as she put it.
 


In the previous book, she wrote briefly about her Aunt Ivy. In this book, she provided details on her aunt and how her passing has turned the family upside down. She called this chapter “Family Drama.”
 
She has also written the same thing as she had written in the previous book, in Part 2, and much more. She even told in detail how her friend Cordelia managed to convince her to write the book.  It’s good for those who have not read the first book. In Part 2, she entitled it “Kindness of Strangers” and she wrote about the people whom have helped her throughout her ordeal – the doctors, her friends, her support group, and fellow NF2 sufferers.
 
One thing that she wrote in this book that made me reflect was about the naysayers who questioned her motive to get treatment abroad. To which she said that she was the only person who knew about her condition and she knew that the treatment in Malaysia could not provide her with a good solution, plus she had to also take into consideration her family’s condition who were incapable of handling her and themselves, should she become incapable too. Hence, her decision to go abroad. Another thing that hit me was the fact that Malaysians are such generous people who were willing to help one another. In fact, Yvonne had been asking for donations a few times and there were supporters who had been her regular contributors. She was also fortunate that someone managed to get her seats on the MAS flight back to Malaysia upgraded.
 
I admired her for the relentless efforts in raising funds for her own surgery. Hannah Yeoh, the Assemblylady was her friend who has helped her to raise the funds. She was also fortunate to have two ladies from an Amway group who brought her to their convention in Genting Highlands where she managed to collect over RM45,000 within one day. She also received donations from a church.
 
In part 3, Yvonne wrote about her father’s health which eventually deteriorated. Her father passed away on October 2010. Just a few days after that, she was on her way to Maryland, USA to participate in a clinical research program on NF2. She was there for the protocol visit for one week. When she came home, an accident occurred at home when she accidentally broke her ABI. She had to go to Singapore to get it fixed.
 
Then she met Shahidah, another NF2 sufferer who had her Acoustic Neuroma surgery at a local hospital, but it was not quite successful and it has also damaged her brain stem. Yvonne helped Shahidah by showing her how to raise funds for her treatment in US. Somehow, the support was not as good as what Yvonne had received.
 
 “Not only were they not supportive they tried to thwart her efforts and drag her down,” Yvonne wrote in response to the lack of support that Shahidah received. It was contrary to what people in her cycle had done for her. So, Yvonne all out to help Shahidah and by October 2011, they managed to gather enough funds for Shahidah to go to US together with her mother, Yvonne and her mother.
 
Part 4 was about her experience with a few men who were courting her. Although they knew that she was suffering from the illness, they still wanted to befriend her. One of them was a wealthy man who showered her with all kinds of materials, even cars with drivers to drive her around. Eventually, none of their relationship worked.
 
In Part 5, Yvonne wrote about her ordeal of having to go under the knife again, in 2015. By that time, they found out that two of her tumors had grown very large and her eyesight was deteriorating. This time around, she was having trouble swallowing food that they had to insert a feeding tube into her abdomen. She came home to Malaysia with the tube in her belly and she had to ask for assistance from the cabin crews during the flight.
 
She planned of setting up her own foundation to support other NF2 sufferers. Despite all that she had gone through, Yvonne was still being positive and upbeat about life.
 
“Life is worth living when I know that is has value and it makes me want to continue living no matter how hard situations can be at times. In fact, we are the ones who decide for ourselves whether our life is worth living or not.” 

Yvonne Foong
1986 - 2019



I'm Not Sick, Just A Bit Unwell (03/2021)

 


Title : I’m Not Sick, Just A Bit Unwell : Life with Neurofibromatosis
Author : Yvonne Foong
Publisher : Yvonne Foong
No. of Pages : 134


REVIEW 03/2021.


One day, I came across a message on Whatsapp about this book. They were giving out this book for free. Buyers need to only pay for the postage. Not only this one, but there is also a sequel to this book that they are giving out for free, too. That got me interested.

Why giving them for free?

Apparently, the author, Yvonne Foong, has passed on in 2019 at the age of 33. Since there are still a lot of stocks, her friend decided to give them away. However, being a writer and aspiring author myself, I bought them at the selling price plus the postage.

Just by looking at the title we would immediately know that Yvonne was full of positivity despite her health condition. Neurofibromatosis (NF), the disease that she was suffering from, is a genetic disorder that affects the nervous system, causing tumors to grow in the body “anytime, anywhere,” as she put it. There are three types of NF – NF1, NF2 and schwannomatosis. What Yvonne had was NF2, a rare form of NF that caused tumors to grow in her brain and spine. The tumors include Acoustic Neuroma which grow on hearing nerves and eventually affect the patient’s hearing. Information on the disease is available in page 115 onwards. You can also get more information on the internet.

Yvonne started off the book by immediately writing about her encounter with Dr. Eow Gaik Bee, a neurologist, who showed her the scans of her spine. It was a 3-page introduction that sets off the pace for us to read on.

In the next chapters, she wrote a little bit about her background. Yvonne also wrote about her Aunt Ivy whom she described as her guardian angel, who died when she was 15. In these earlier chapters, she wrote about her frustration that due to her family’s busyness, her deteriorating condition was neglected. Her parents, in particular.

The first sign of her illness occurred when she was 13, when she lost the hearing on her right ear. Unfortunately, it was dismissed by her mother that she didn’t clean her ears. The next symptom was the feeling of dizziness and nauseous, including blue black marks all over her body, that had caused curiosity among her teachers and friends. She was also having problems with balancing herself, until she had to stop going for ballet and figure-skating classes.

She was finally taken to the hospital for a thorough check-up when she was unable to walk, at the age of 16. That was when she had her first spinal surgery. After the surgery she had to stay in the hospital for physiotherapy and rehabilitation. She ended up being in the hospital for one month. She told of her unfortunate encounters with uncompassionate doctors and nurses, which I could relate to, when my late brother was hospitalised. Yvonne also wrote about her regrets for taking things for granted, such as being able to move her legs and walk; and how she was dependent on her mother again, like when she was little.

She had her second surgery in 2003 to remove the Acoustic Neuroma. Despite her condition, she managed to sit for her SPM at the end of the year. However, soon they found that the tumour was not completely removed and it has affected her hearing.

She then made her own research about the illness. In the NF support group, one of the members suggested her to email Dr. Friedman of the House Clinic. Fortunately, they were able to provide her with financial assistance for the surgery while her aunt sponsored the flight ticket. At 18, she went to LA for the surgery. That was the first time she met with Dr. Friedman, who later played a significant role in her life and the life of other NF2 sufferers.

During her first visit to LA in 2004, Dr. Friedman managed to remove the Acoustic Neuroma without damaging her hearing nerves. However, she still needed to have an Auditory Brainstem Implant (ABI) device which would cost her USD58,000 (about RM300,000). That’s when her friend suggested she wrote a book about her ordeal, to collect the funds.

However, out of 40 proposals that she sent out to publishers, only 2 responded and they were a Chinese literary agent in Malaysia and another one in Europe. Then she got to know John Ling who taught her about self-publishing. Other than publishing her book, Yvonne also sold T-shirts for her fund-raising project. She was also invited to speak at various events.

What amazes me was that during the whole ordeal, she still managed to get into College. She was also awarded the Most Outstanding Youth of the Year in 2005. From that winning, she was awarded a scholarship by Life College to continue her studies in Mass Communications.

The main points that I could gather from this book, that I think would also benefit us all:

  1. Illness will not only disable us physically, but mentally and financially too.
  2. We need to do our own research on the best medical treatment. We cannot rely on the hospitals to provide us with alternatives.
  3. We need to also be able to find our own funds if we chose to have our treatment in private hospitals or abroad.
  4. It helps to join a support group where we can get more information about who and where to go to, for alternative treatments.

After reading this book, I could not help but wonder how had she managed to go through all the challenges. Not only did she have to face the illness itself, but she also had to go under the knife for numerous numbers of times. She also had to find her own funding which amounted to hundreds of thousands of Ringgit and travelled alone to the US. On top of that, she also had to take care of her ailing father.

What I could say is, it takes true courage and internal strength to go through all these ordeals.

I give this book a FIVE πŸŒŸπŸŒŸπŸŒŸπŸŒŸπŸŒŸstars for the contents and the impact that it has given me.

 



Life Full of Reading (02/2021)

 


Title : Life Full of Reading
Author : Syed Ahmad Fathi
Publisher : Independent Insight
No. of Pages : 161


REVIEW 02/2021.


I am sure you have heard the quote “Don’t judge the book by its cover.” This is one of those books. Do not be deceived by the illustration of a father pouring over a book with his two children on the cover. This is not a family book. Nor is it a children’s story book. This is in fact a collection of book reviews written by the author in various platforms.
 
I bought this book because I am learning how to write book reviews myself. Fancy that, I am now writing a review of a book on book reviews.
 
This book is separated into two parts – Long Reviews and Short Reviews. There are 30 books in the Long Reviews and 41 books in the Short Reviews. Only a few of them are novels. Most of the books are about economics, psychology and social sciences. He definitely has an array of non-fiction books and I have read only 5 out of these 71 books. A few I have already bought and yet to read.
 
Throughout his writing, I could sense that the author was trying to be as objective as he could about the books that he has read. Thus, in the reviews he did not counter the thoughts, opinions and argument presented in the books. However, in certain reviews he did mention about his emotions after reading the book. For example, in his review of The Ethnic Cleansing of Palestine by Ilan Pappe, Syed ended it with, “If you did not cry reading this book, you have lost your heart.” This is one of my favourite reviews.
 
In the review of Sapiens : A Brief History of Humankind by Yuval Noah Harari, he wrote that he found the saddest part of history when the whole natives of Tasmania were wiped out. I also love his reviews on From Beirut to Jerusalem by Ang Swee Chai, Beyond Chutzpah : On the Misuse of Anti-Semitism and the Abuse of History by Norman G. Finkelstein.
 
What I particularly like about Finkelstein’s book is that he criticized Alan Dershowitz, a Harvard Professor, who wrote the book The Case for Israel. Finkelstein gave documentary evidence to destroy many of Dershowitz’s claims. This review gave me the realization that whenever we want to write something, we must always ensure that our facts are right. Otherwise, it will damage our position, status and image.
 
Some of the books that I feel intrigued to read after reading his reviews are the following:
  • From Beirut to Jerusalem by Ang Swee Chai.
  • The Ethnic Cleansing of Palestine by Ilan Pappe.
  • The Power of Now : A Guide to Spiritual Enlightenment by Eckhart Tolle.
  • How Starbucks Saved My Life by Michael Gates Gill.
 
I give this book FOUR 🌟🌟🌟🌟 stars considering that it provides a lot of insights on other books.
 


25 January 2021

Air Pasang Pagi (01/2021)

 


Tajuk : Air Pasang Pagi
Penulis : Tok Rimau & Fraja Beha
Penerbit : Dubook Press Sdn. Bhd., 2016
Jumlah Halaman : 118

ULASAN 01/2021.

Aku buat pesanan untuk membeli buku ini setelah aku membaca hantaran Fraja Beha di laman Facebook beliau dalam bulan November tahun lepas. Ketika itu, Dubook Press Sdn. Bhd. sedang rancak menjual buku-buku terbitan mereka secara lelongan setelah syarikat itu membuat keputusan untuk menutup operasi mereka. Mereka juga telah menyerahkan semula hak cipta kepada semua penulis. Pada kesempatan itu, aku membeli tiga buah buku ini. Salah satunya untuk aku sendiri.

    Mengenai penulis-penulis (sebetulnya, ilustrator) buku ini – Fraja Beha tidak begitu aku kenal, hanya pernah mendengar namanya sahaja. Dalam penerangan mengenai penulis & pelukis, di bawah nama Fraja Beha ditulis “Error 404. Maklumat tidak diperolehi.” Malah, tidak ada apa-apa maklumat pun mengenai latar belakangnya yang boleh diperolehi dalam Google. Sungguh berahsia orangnya. Tok Rimau pula hanya kukenal secara maya, melalui Facebook, dan aku tahu beliau seorang yang memang handal melukis.

    Buku ini merupakan sebuah travelog / memoir ketika mereka ke Pulau Mabul dalam tahun 2015 - 2016. Menurut kata Tok Rimah, buku ini disiapkan dalam tempoh 18 bulan dan sepanjang waktu itu, dia telah pergi ke Pulau Mabul sebanyak 3 kali. Mabul. Sebuah pulau kecil di Sabah. Kedudukan Pulau Mabul ni berhampiran dengan ‘bibir bawah’ peta Malaysia Timur yang bentuknya seperti seekor kucing itu. Lokasinya juga berhampiran dengan Pulau Sipadan. Pulau ini terletak dalam perairan Laut Celebes yang juga dikenal sebagai Laut Sulawesi.

    Travelog ini yang dipanggil “petualangan” oleh mereka, mengisahkan tentang pengalaman mereka ketika menyelam skuba di Laut Celebes, bergaul dengan Bajau Laut atau Sea Gypsies di sana dan juga kisah mereka mengambil lesen skuba.

 


    Apa yang menarik tentang buku ini selain dari pengalaman mereka ialah lakaran-lakaran yang menggambarkan apa yang diceritakan. Ujang yang menulis Prakata 1 menyebut bahawa lakaran mereka ringkas dan stroke mereka juga tidak berapa matang. Namun begitu, walaupun semua lakaran dibuat menggunakan dakwat hitam putih, aku sebagai pembaca masih dapat menggambarkan suasananya. Termasuklah pemandangan Bohey Dulang yang dilakar oleh Tok Rimau dalam halaman 19. Prakata 2 pula ditulis oleh Daniel Mahendra, penulis buku Perjalanan ke Atap Dunia yang berasal dari Indonesia. Katanya buku pertualangan ini santai dan penuh dengan jenaka namun tetap mempunyai mesej yang tersendiri. 

    Benar, buku ini ditulis dalam gaya bahasa yang mudah difahami. Seolah-olah mereka sedang bercerita secara bersemuka. Ada kalanya boleh membuatkan aku ketawa seorang diri. Selain dari itu, tarikan kepada buku ini ialah penceritaan yang dibuat dalam bentuk tulisan tangan. Tulisan tangan yang ‘sebiji-sebiji’ (bukan tulisan sambung / berangkai) memudahkan pembacaan.

    Tok Rimau menulis dan melakar pada bahagian pertama buku ini. Beliau menceritakan sedikit latar belakang mengenai Pulau Mabul sambil menyelitkan lakaran pemandangan resort yang mereka diami, kawasan perkampungan Bajau Laut dan rumah-rumah Bajau di pulau-pulau sekitarnya iaitu Pulau Selakan, Maiga, Sibuan dan Mantubaan. Kebanyakan dari rumah-rumah ini dibina di atas air. Rumah mereka kecil dan barang di dalamnya juga ringkas. Bak kata Tok Rimau, kalau mereka mempunyai banyak harta di dalam rumah itu, “susah mahu berangkut bila tiba masa untuk pindah.”

Lakaran yang dibuat oleh Tok Rimau merupakan koleksi petualangan beliau ke Mabul sebanyak 3 kali. Bermula dengan hanya snorkeling di permukaan air, dia kemudiannya mencuba Discovery Scuba Dive (DSD) dan akhirnya mengambil lesen skuba. Maka dalam beberapa halaman diceritakan dan dilakarkan tentang proses pembelajarannya termasuk ketika membaca buku Open Water Diving dan pengalamannya ketika mula-mula berada di dalam laut.

Aku juga tertarik dengan kata-kata hikmat Tok Rimau:


“Di laut ini aku pelajari betapa sedikit seorang insan perlu, 
bukan betapa banyak.” 
– Tok Rimau 24/12/15

 

Bermula pada halaman 62, Fraja Beha pula menulis dan melakar pengalamannya. Beliau telah menjejakkan kaki ke Pulau Mabul buat pertama kalinya dalam tahun 2014. Sama seperti Tok Rimau, Fraja mengisahkan tentang pengalaman beliau ke Mabul sebanyak 3 kali.

    Tetapi, berbeza dengan Tok Rimau, Fraja lebih banyak menulis dari melakar. Namun, gaya penulisannya yang bersahaja menjadikan ia sebuah pembacaan yang menyeronokkan. Beliau juga memberi serba-sedikit penerangan mengenai kehidupan etnik Bajau di sana, terutamanya mengenai anak-anak Bajau Darat yang bebas ke sana ke sini dan tanpa segan-silu meminta wang daripadanya. Malah, ada juga yang berani merampas beg duit daripada tangannya.

    Mabul terbahagi kepada dua bahagian iaitu Kampung Mabul dan Kampung Musu, manakala penduduknya pula terbahagi kepada kaum Suluk dan Bajau. Sebagai penduduk pulau, sudah tentulah hasil laut merupakan punca pendapatan utama mereka. Menurut cerita Fraja, hasil laut di sini murah-murah. 

    Fraja juga tidak ketinggalan menulis tentang pengalaman beliau ketika mengambil lesen PADI Open Water Course bersama dengan kawan-kawannya, yang diajar oleh seorang dive instructor bernama Radzuan Ismail. Buku ini akhiri dengan kata-kata semangat dari Fraja untuk kita semua pergi menyelam. Katanya: 


If we wait until we are ready, we’ll be waiting for the rest of our lives. Now, go dive!”


Memandangkan buku ini bacaan ringan yang mempunyai unsur-unsur seni dan sarat dengan maklumat, maka aku berikan EMPAT 🌟🌟🌟🌟 bintang. 

Sesiapa yang ingin memiliki buku ini, aku ada dua yang baharu. Siapa cepat, dia dapat!






17 January 2021

134R4NG (52/2020)

 


Tajuk : 134R4NG
Penulis : Firdaus Zolkifli
Penerbit : Cakcibor Creative, 2016
Jumlah Halaman : 132


ULASAN 52/2020.

Buku ni aku habis baca pada 4 Januari 2021. Maka sepatutnya ia menjadi buku pertama yang aku habiskan dalam tahun 2021. Aku mula membacanya pada 15 Disember 2020. Kononnya aku boleh habiskan dalam tempoh seminggu, iaitu pada atau sebelum 30 Disember.

Malangnya, pada 18 Disember 2020 aku mula mengembara ke utara bersama anak-anak. Kemudian berlaku beberapa insiden di sana yang menyebabkan aku tidak dapat menumpukan perhatian kepada pembacaan. Hingga akhirnya aku dapat fokus semula setelah aku kembali ke KL pada 2 Januari.

Bunyinya seperti aku beralasan kerana ingin memenuhi objektif 52 buah buku bagi tahun 2020. Tetapi, memang selayaknya buku ini menjadi penutup kepada pembacaanku dalam tahun 2020. Oleh kerana itu, aku melabelkan ulasan ini sebagai Ulasan 52/2020.

Buku ini dihadiahkan oleh En. Zulkifli Zulkarnain kepadaku. Semoga Allah SWT memberkati dan merahmati amal kebaikannya.

Ia sebuah buku yang kecil, bersaiz 12.5cm x 17.5cm. Ia mengandungi 15 cerita pendek tulisan Firdaus Zolkifli. Lebih kurang sama konsepnya dengan buku Agen Perisikan Cinta Bil. 0, JunBug. Baca di sini.

Cerita-cerita dalam buku 134R4NG ini tidaklah terlalu berat untuk dihadamkan. Namun, ada beberapa cerita yang menerobos benak fikiran. Contohnya seperti Ali Atan, Hero Yang Resah; Pengalaman Cuti Sekolah; dan Air Mata Ubi. Ada juga cerita yang menusuk kalbu (deep) seperti Soalan; Abang Burger; Pelacur I dan Pelacur II; Abah dan Angkasawan; dan Karangan yang membuatkan aku termangu seketika selepas membacanya.



Malah ada juga cerita yang kelakar (bukan lawak) seperti Mat Kasan Abang Bunga; Tahi; Ibu; Mimpi I dan Mimpi II. Cerita yang kita anggap seperti biasa tetapi telah digarap dengan sebegitu indah hingga tidak dapat diteka apakah pengakhirannya. 
Cerita yang paling sadis dalam buku ini tentulah Asam Pedas, yang mengisahkan tentang seorang lelaki yang panasaran kerana ditinggalkan kekasih hatinya.

Walaupun buku ini sebuah bacaan santai, ia tetap mencabar minda. Oleh itu aku berikan EMPAT 🌟🌟🌟🌟 bintang.